Adam, first off don’t give up. Take the originals antibiotic as recommended to try to overcome it. Here’s the issue, it is not believed today that you can overcome.

When taking the antibiotic for your blood, also take a probiotic for your intestinal flora. Antibiotics normally work too good at killing your good flora in your stomach.

Also, take vitamins. Make sure your body as it’s nutrition it needs. I’m not talking about the dollar store special or the one that’s the cheapest primed to your door. Find a good local naturopathic doctor or chiropractor and get the good stuff. Standard Process makes good vitamins. Start out with a solid cleanse. Eat fish 2 times a week (that’s your best anti inflammatory). Cold water fish, as in Cod, Trout/Salmon, Walleye, Halibut, etc (not bass, panfish, talapia).

Initially like the flu. But then pain In Joints and muscle that won't leave

Followed by brain fog

Some problems are caused by co-infections Other bacteria that will grow and populate In Your body that's why not everyone gets same symptoms.

Thanks mt

Just asked because I was reading about the symptoms on the net...I’ve had a terrible issue with my neck area and headaches..
While reading about the symptoms I notice that the neck area can be affected..

I’ve been to the chiropractor, doc, and nothing seems to help...

My joints bother me all the time also...hips, knees and so on...

Anyone with lymes disease have any of these symptoms?

Thanks

I was treated with 40 days of doxycyceline and then 28 days of iv rocephine. And was told i was cured. For the most part i feel good but i still have joint pain that comes and goes but lead a normal life.its nothing to mess with . The sooner your diagnosed the better you are.

Start Lyme treatment ASAP

Sounds like you may have it. Do NOT trust Results of Western Blot test if that's what doc wants to do

So do you just tell the doc to treat for Lymes Disease? Or do the blot test and go from there?

Thanks

Thanks, will look into it.
Dave

Do what ever it takes to get them to treat you

My Mom has been going to the Dr. for years trying to get help. Two hospitals and several doctors kept telling her that she is just getting old and arthritic. Her digestive system started failing last year and she knew it was more than age and arthritis.

She went to another doctor, and she told me today that the doctor diagnosed her with full blown lyme disease and it was everywhere. Doctor said she's probably had it 20 years or more Also yeast and Candida infections throughout her body.

She's a tough lady and the best teacher I ever had. She does most of her research at the local library, as she is 76 years old and not computer/internet savvy. I am trying to reach out and learn as much as I can.

Thank you all for sharing your stories. Chancey

Patrice is dead on about this subject. http://drcharlescrist.net/about-dr-crist.html. More research into the subject. I went to him and he treats people from all over the country. One or two rounds of antibiotics ain't going to cure it. You folks up north have way more lymes but we have a different tick disease down here.

It depends on your age, but I would do some cardio and lose any extra weight if you have it. I have all types of health issues and have also been treated for lymes disease. I have found that no matter what, consistently doing cardio or whatever I can to stay in shape has kept my energy up and stopped me from getting sick when everyone around is getting the flu. The trick is to do whatever you can when you promise yourself you are going to do it. If you cant get yourself going, buy a thing of Pre Workout drink mix if thats what it takes. That will get you going for 30 minutes. After the first month of feeling sore with lower energy from doing it, your energy will eventually go up and your metabolism will too. There is no cure. If you exercise it will make diet easier.

If you give into low energy it will never go back up. The sooner you do things to raise your energy, the better off you will be in the long run. By exercise I mean even walking, if thats where you are at. Do what you can do, not what other people consider exercise. Just always aim for a tiny bit more than before.

Adam, you are very lucky to have Patrice as a resource. The biggest piece of advice I have is doing what she says. Get on with the Dr. who is treating her and follow their instructions exactly. It is unlikely you will be successful and very risky to try to take care of this yourself.

I have cronic lyme as well as coinfections. My parents have the same issues. We all have been through several years of treatment. Finding a truly good doctor is of the utmost importance. It sounds like Patrice has one in your area. I am in AK but see a specialist in NY because finding top quality care is difficult. It took about 5 years for my family to find really good care.

The amount of meds and the costs can be staggering, even with insurance. Be prepared and make a plan.

Lifestyle changes that helped me most were completely cutting alcohol, caffeine, and processed sugar. I cut dairy and gluten as well but am not completely sold on that having helped. The healthier you live the better.

This year was my 4th year of intensive treatment. Just came out the other side of the heaviest antibiotics 10 days ago. The side effects were bad during the heaviest doses. On a maintenance protocol now which hopefully keeps me good in perpetuity, fingers crossed.

Thank you again Patrice! Great info and glad your rounding the bend on this!!

X2 on Standard Process.

There are more and more diseases that they are finding in ticks with their newly refined PCR and other systems they are using now.
When there are 2 or more diseases in a tick bite then things can go sever really fast.
The 12 hour attachment rule on tick bites is out the door now because transfer can be immediate with some of the new bacterial disease..... that town in Ontario with the new disease comes to mind.
I have some really good pics of some ECM's of deer tick bite marks on coyotes on the skin side where the bacteria was growing.( cant get them transferred to show grrrr) All 8 ticks collected proved positive for Lymes.

X2

Practice has helped me a lot unlike my ILADS Dr. 1st visit was do this expensive test come back in a month, went back she said only drink and cook with Fiji water or deionized water eat only organic or grass fed meats and other drastic changes to diet. Then went back in 3 months then she kicks me out until I'm smoke free for preferably 6 months.

Nearly went bankrupt with the water and organic & grass fed meats for a family of 5.

Thank you, you guys.

Every day I thank God for the path I have landed on and I will do everything I can to help everyone I can. A quick update - since Adam Potaczek posted this in October, we have talked a few times and he has gone to see my Lyme doc. He was filled with hope. I will be checking back in with him soon and cannot wait to hear how he is doing.

January will be three years of treatment for me and I'm getting near the end! I have an appointment to see my Lyme doc next Tuesday! My biggest benchmarks come every year when I work on the Christmas tree, which is sitting here next to us right now. In 2015, I couldn't spend much time up on the ladder working on the tree without blacking out and falling down the ladder. Over and over. I thought that getting the tree done was impossible. Actually, I thought everything was impossible at that point. It's like remembering a different life! I am so much better now. Just this afternoon, I remarked to Zim that this is the first year my hands and fingers didn't hurt at all when I was tightening up the bolts in the tree stand into the tree trunk. Barely a remnant of the old symptoms are left.

If you're new to this, look for a doctor who is a member of ILADS (International Lyme and Associated Disease Society). They know what is working and on the cutting edge of which antibiotics to combine - what 1-2 punch works the best, which combinations to pulse back and forth at what dosages. This is way beyond the average dosage of Doxycycline for a few weeks. This is the stuff they get out to truly treat the people for whom the standard treatments failed - AND the stuff they get out to support every other part of your health while you survive the treatment (probiotics, vitamins, supplements and all kinds of other stuff). And it works when they know what they're doing, but they often have to risk their careers and licenses to do it. It's complicated but it's worth it. If you need encouragement or advice, feel free to PM me. If I'm not on here much at the moment, my PM's get forwarded to my email, so I'll catch it.

You can save your life and be bouncing off the walls again! Ask the guy who has to put up with me!!!

Adam M, I just saw your reply. The person you were seeing didn't learn that stuff from ILADS. That's unfortunate. She may be a member, but that's not what ILADS is about. I wish you had found a good doctor. ILADS isn't training doctors for a regimen of Fiji water and grass fed beef! That's crazy! Nice diet, but where's the Lyme treatment? I'm sorry to hear all of that.

Folks who have this. Please consider adding BANDEROL, I'm telling you it has helped me a lot. 9 years of Lyme. Including lots if antibiotics, experimental treatments and I was taking 8 Norco a day for the pain in my muscles and joints

Now I'm just taking banderol Period


I have been having some issues with digestive system but I think it has nothing to do with this, it started with a blockage in my intestines and has continued to be an issue for about three months now. Dr thinks may be a ulcer. But I am sick of Docs. So I'm eating differently to see what relief I can get It has been better lately

Thanks Patrice. I'm glad you're making great progress.

I'm sorry to say it. Her primary medicine practice is neurological (specifically neuroscientist, neurosurgeon and another neuro field I can't remember). She's very smart but she seems all over the place. I liked her but I still don't know what she's trying to figure out and certainly cannot afford the diet/ lifestyle she insists I be on for her to treat me.

All I know is everything is worse and was real close to being in Cleveland for a whole team of drs but the insurance says I need to see more drs here first. I had 2 appointments scheduled for this Tuesday and had to cancel them. Still have one scheduled for April. I have mixed feeling about missing these appts mainly because my daughter's birthday is Wednesday. The appointment in April will be a whole team of Drs and internists.

I'm still learning my physical limits and try not to push them but sometimes I have to