I am curious if any of you have had chronic lymes and have any advice on getting better. I recently found out I had lymes and took the antibiotics for the 30 days and felt great. I mean I felt like I was 20 years old again and did not realize how bad I was. The problem is after a few weeks of getting off the medication I started to feel bad again. I called the doctor and we talked and decided to have me take meds for another month. They said sometimes it takes more time and medication to knock it down but this round didn't work as well as the first time. In fact it didn't do much to help this time. Back to the Doc again and talked about diet and avoiding inflammatory foods like gluten, sugar etc. It's tough and not sure what to think anymore. My biggest symptoms that are hard to deal with is the fatigue and brain fog. I am tired all the time and I don't feel like doing anything but rest. Hopefully someone can shed some helpful light for me and others. Thanks in advance. Adam

alls i know is don't mess around,i've saw ignoring symptoms take their toll on 2 friends.dr.s,dr.s,dr's and if that dont work go to another dr.

I think Patrice had posted about this before, herself has had it and its a long war to recovery.

Many Docs don't give the right treatment and not near long enough. Many people think they are done with just a few treatments......not near the case, in the long haul.

Its an insidious involved process that lymes does to the whole body.

She is one of the few that happened upon the right treatment and is almost recovered completely.

She has been so successful, and the road so long and varied to root out every trace of it, that she has been thinking logging it all in writing to help others . I have wholeheartedly encouraged her in that venture.

Contact herself, and she will gladly offer suggestions.

Sounds like old age.
Good luck,hope you can beat the Lymes disease.

Been there. I agree with Sharon that Patrice knows the most about Lymes than anyone I know...even Docs don't seem to know the full story.

Moosetrot

Thanks for the replies and I hope Patrice can weigh in on this. I'm pretty sure I have had it for over a year or more. I have done research and they don't have a good handle on this disease. Much worse then I ever imagined. Wouldn't wish it on anyone. Adam

Yes you are right in your observation. It is terrible, and what is just as bad, is that there is woefully too little instant help on this.

Often times, Docs will misdiagnose the symptoms, as they can often seem like something else entirely, when it is actually the Lymes.

Most often, the whole world of parasitic influence in humans and diagnosis goes not even thought of in the typical AMA system...there are specialists in this subject alone, and IMO they are worth their weight in gold far and beyond the medical profession in general.

I most always have a running pm with Patrice, and I just sent herself a heads up about this. She's quite busy last few days, but still checks in here.

Most doctors are CLUELESS when it comes to Lyme.

I've had it for 9 years, been treated with many things, doxy, uv light to my blood, diet ect ect ect


I have stumbled upon a product call BANDEROL, this has been the best thing for me. Mixed with "cats claw" extract has done wonders. Mixed like taking them at same time and alternating

You can order on the internet Prices vary.

Will it cure you? I can't say, some things I've read say yes others no

I just know I have felt the best I have in nine years. Even stopped taking my Norco (was tAking 8 a day for pain)

Don't waste time in not treating as permanent damage can come from not treating it

I HAVE ZERO FAITH IN DRS ON THIS SUBJECT, they are all experimenting on you when they treat you for Lyme in my opinion

My daughter has lymes. She was originally treated for it when she was 5 years old, in the late 1980's.
She started having symptoms again when she was in her late twenties.
She tried several MD's with no results.
She now sees a naturopathic Dr. and is feeling better but not cured.
We lived in Alaska, north of the Arctic circle when my daughter came down with Lymes.
At that time She spent about 2 weeks in Fairbanks under observation. Then several days in the hospital for treatment.
The only logical conclusion as to how she contracted lymes was that a cousin and his wife had come up to visit from the midwest less then a week before our daughter had symptoms.
They may have carried something up with them.

I think that you have likely already received any benefit from antibiotics that you are going to and since additional antibiotic treatments are about the only tool traditional medics have available, more antibiotics are MUCH more likely to do harm than good. There are some medical people in Mpls who specialize in treating chronic lymes , Mark Rawson is one such. Since western Wisconsin and much of Minnesota are hotbeds of the disease there seem to be an especially large number of medics in Mpls who are offering experimental treatments for what is now defined as chronic lymes. Fairly easy to track some down.

Sounds like your having symptoms of candida or parasites now after taking antibiotics so long. Antibiotics destroy your good bacteria and then other organisms take over causing fatigue and brain fog. I'm sure lymes plays it's part too.

Homeopathic remedies have been known to be a big help with things the medical profession struggles with. Not promising a cure cause the body can be quite complex but here's a remedy that has helped many.

Lyme HP: is a high potency homeopathic remedy for the temporary relief from symptoms due to Lyme's disease. It provides temporary relief from aches and pains of the joints and muscles, as a consequence of infection.
Lyme HP contains Echinacea angustifolia 3x, Hydrastis canadensis 3x, Baptisia tinctoria 3x, Lyme nosode 12x, 30x, 200x, Rhus toxicodendron 30c, Arsenicum album 30c, Ledum palustre 30c, Colchicum autumnale 30c, Kalmia latifolia 30c, Lycopodium clavatum 30c, Phosphorus 30c, Chelidonium majus 30c, Bryonia alba 30c and distilled water. 20% ethanol.
Herbal drainage: Use with PropoliCom, EchinaCom or Uña de Gato (Cat's Claw).

PM me if you would like to know where to order from.

Oh my gosh, Adam - and you're in Wisconsin! There's help here! I'll share all of the information and experience I have with you. You can beat this and there's a reason you started on the road to recovery and stalled. Lyme bacteria react to antibiotics by balling up and encapsulating so they can be impervious to certain antibiotics and really, really resistant. The best Lyme docs will put you through a series of different and alternating very strong antibiotics that will bust through encapsulated Lyme and flush it out in all the places it hides, and also cross the brain-blood barrier to clear it from your brain - and also give you things to flush out all of the toxins from killing it and support your system in every way while you wipe it out completely. It is not something you want to treat partway and then take a break. One problem is that the majority of mainstream doctors are marching to IDSA guidelines that won't allow them to treat it really aggressively or they will get in trouble. The true life saving Lyme docs are ILADS members and are taking risks and saving lives.

By the way, I am coming up on my third year of treatment, screaming into the goal line and bouncing off the walls with energy and clarity and memory and ambition and great health - all thanks to the right Lyme docs! I will be wrapping this up soon and have learned great lessons!

Check your messages, Adam!
Patrice

Good luck Adam I'll be praying for you. A couple more inflammatory foods include dairy (especially processed dairy like most cheddar) & eggs.

Thanks for all the great info. Michigan Trappin that banderol sounds like it is good. I did some research on it. How much do you take and how do you take it? I'm taking probiotics and other things to get the gut health back. Patrice thanks and I will be talking with you soon on this. I have a hard time just focusing and typing this now. I feel like I need a nap. Adam

Wishing you good luck Adam
I just completed another 21 day regiment of Doxy , and now feel good ..
This was my second go around with a tic born disease
They put me in the hospital 3 years ago .

I got another tic bit , and 14 days to the day - all (This word is unacceptable on Trapperman) broke loose ...
Makes me terribly sic ...it seems to take 14 days to get in my blood ...
Hard to believe that little tic can do that much damage ..

I take 30 drops twice a day

Yo have to start it slow, starting with 1 drop twice a day, 2 the second day 3 4. 5. For 30 days then stay at 30 twice a day

If you start too strong you will have a herksky effect. That's probaly spelled wrong. I had a awful one for one of my Lyme test

It breaks down the biofilm that Lyme uses to protect itself when it clumps totter to defend against antibiotics.

Pm me if I can be of further help

Wife was misdiagnosed with Rocky Mtn SF in the late 80s. Our vet saw the textbook bullseye rash and said she thought it was Lymes.
Reg Doc had never heard of it! Couple weeks of antibiotics and she was fine.

About the same time, I started feeling poorly. Being an idiot, I waited more than a year and a half! Couldn't sleep, low grade fevers, joint pain and swollen knees. Lost almost 20 lbs. Finally saw a Doc. He was excited: I was his first Lymes case!

Couple weeks of antibiotics followed by 3 more weeks of stronger antibiotics.

Felt better, but have never felt "right".
At this point, is it Lymes or getting old?

Do get tested every couple years, always have a few of the Lymes markers but never enough to be considered positive for Lymes.

Dave try some banderol. It will not harm you.

When I first got Lyme I was misdiagnosed too, was even told by manny "you just gettin older"

I was only 43 at the time, and knew if the stuff I was experiencing was "just getting older stuff" I said i will not live to be 50 if this is getting older

If you are still experiencing symptoms, get treatment
I went through testing for everything under the sun and brain scans, ect ect ect

YOU HAVE TO BE YOUR OWN ADVOCATE when you have Lyme Search out help and never give up, ther has been several times over the years I want to just take a long walk in to the woods. But because of my children I didn't. And now I am so glad I didn't

What are the symptoms of Lymes Disease prior to treatment?
I’ve read about the symptoms on the net.
Was just curious to get first hand info from someone that actually experienced the symptoms...

Just asking because I’ve found a few on me while bowfishing and turkey hunting this spring.