Re: Kristen needs some help - GoFundMe
[Re: Canvasback2]
#7596267
06/01/22 09:19 PM
06/01/22 09:19 PM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Kristen: The old stand by for Anti Convulsant meds was Dilantin. It works, but has a lot of bad side effects , when used long term . The newer class of drugs have their good points and bad points. If you are on Dilantin, and are expecting to be on that long term, you might want to see if the Neurologist can switch you over to the generic form of Keppra. Less side effects. Ony problem with that drug, was when I was being weaned off Dilantin, and onto the Keppra. You end up taking 2 different Anti Convulsant meds at the same time. Slowly adding more of the new drug, and over time, taking less of the old drug. I am currently trying Topamax. My fingers and toes tingle constantly and I'm very, very drowsy. Do you think that's reasonable?
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Re: Kristen needs some help - GoFundMe
[Re: MIsparkz]
#7596268
06/01/22 09:20 PM
06/01/22 09:20 PM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Kristen I’ll be praying for you and your beautiful family. Although we’ve never interacted I’ve enjoyed your posts over many years. Like so many others here you feel like family that I’ve never met or even talked to😀 Please pm me your preferred way to help….if that’s the GoFundMe page that’s ok too.
Jeff Thank you so much Jeff
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Re: Kristen needs some help - GoFundMe
[Re: Kristen🦊]
#7596294
06/01/22 09:57 PM
06/01/22 09:57 PM
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Joined: May 2010
Posts: 10,491 MN
Steven 49er
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PM me too Kristen. I'm on seizure meds myself. What are you on? I'm having a hard time with mine. If you don't mind my asking kristen, what do they have you on. When my son started having GM seizures they put him on Kepra. That stuff knocked him on his butt, now he's on lamactical and I believe depakote. Even to this day he isn't the same, the meds slow him down for sure. The positive is he hasn't had a seizure in 5 years. It seems everyone is different and different medicines or cocktails work better for each individual. It's scary and to my thinking, the neurologists seem like they don't know squat. The reality is they don't, I ended up taking my son to the Mayo Clinic as I felt I wasn't getting satisfactory answers from our local neurologist. It was basically the same information at both places.
Last edited by Steven 49er; 06/01/22 09:57 PM.
"Inflation is always and everywhere a monetary phenomenon". Milton Friedman.
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Re: Kristen needs some help - GoFundMe
[Re: Paul Dobbins]
#7596303
06/01/22 10:07 PM
06/01/22 10:07 PM
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Joined: May 2010
Posts: 10,491 MN
Steven 49er
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Kristen I missed the post where you stated what you are taking. I am not familiar with that medicine.
One thing I found out after my son started having seizures at 17 years old there were/are lots of other people who have the same affliction. Eventually it was determined my son has epilepsy and it was causing his seizures. I have a friend that had one at 18 years and had his second one at 45, no treatment in between. They can't determine what caused his last one and was most likely stress.
Drowsiness is a side effect of anti-seizure meds or at least it is in my son's case. When my son began having them, he had two GMs in a period of just a few days. They put him on a pretty strong dose of Keppra, as I said, it turned him into a zombie. Eventually, they lowered the dose and changed medications, and lowered the doses periodically.
Good luck and don't be ashamed to ask questions, there are quite a few people on here that have gone through what you are or a family member has. If I remember correctly they told us that up to ten percent of the population has seizures and approximately 4 percent have epilepsy.
"Inflation is always and everywhere a monetary phenomenon". Milton Friedman.
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Re: Kristen needs some help - GoFundMe
[Re: Paul Dobbins]
#7596311
06/01/22 10:18 PM
06/01/22 10:18 PM
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Joined: May 2007
Posts: 2,626 Flint, Michigan
bhugo
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Donated. Will do so again after paycheck. Praying for you.
Member MTPCA, FTA and NTA
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Re: Kristen needs some help - GoFundMe
[Re: Paul Dobbins]
#7596319
06/01/22 10:29 PM
06/01/22 10:29 PM
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Joined: Dec 2006
Posts: 2,301 Waterville Minnesota
mudtracker
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Hope they are able to get it under control. My daughter has seizures, the first meds they gave her made her so angry and aggressive it was scary. Now she is on a keppra generic medication and it works very good for her.
WHO MADE THIS MESS ALL OVER MY FLOOR THE MUDTRACKER WAS HERE HE HE HE
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Re: Kristen needs some help - GoFundMe
[Re: Steven 49er]
#7596501
06/02/22 07:39 AM
06/02/22 07:39 AM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Joined: Sep 2009
Posts: 1,790
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Kristen I missed the post where you stated what you are taking. I am not familiar with that medicine.
One thing I found out after my son started having seizures at 17 years old there were/are lots of other people who have the same affliction. Eventually it was determined my son has epilepsy and it was causing his seizures. I have a friend that had one at 18 years and had his second one at 45, no treatment in between. They can't determine what caused his last one and was most likely stress.
Drowsiness is a side effect of anti-seizure meds or at least it is in my son's case. When my son began having them, he had two GMs in a period of just a few days. They put him on a pretty strong dose of Keppra, as I said, it turned him into a zombie. Eventually, they lowered the dose and changed medications, and lowered the doses periodically.
Good luck and don't be ashamed to ask questions, there are quite a few people on here that have gone through what you are or a family member has. If I remember correctly they told us that up to ten percent of the population has seizures and approximately 4 percent have epilepsy. It sounds like it could be a trial and error with the medication. I have no recollection of the seizure but I did chew my tongue up pretty bad. I'm waiting for surgery clearance now to have a parotid tumor removed. I'm sorry your son has gone through this, no one should have to.
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Re: Kristen needs some help - GoFundMe
[Re: mudtracker]
#7596504
06/02/22 07:40 AM
06/02/22 07:40 AM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Hope they are able to get it under control. My daughter has seizures, the first meds they gave her made her so angry and aggressive it was scary. Now she is on a keppra generic medication and it works very good for her. Oh my goodness!! Poor thing! I'm glad they were able to get things straightened out for her. I can tell my mood changes.
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Re: Kristen needs some help - GoFundMe
[Re: 330-Trapper]
#7596505
06/02/22 07:41 AM
06/02/22 07:41 AM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Re: Kristen needs some help - GoFundMe
[Re: bhugo]
#7596506
06/02/22 07:41 AM
06/02/22 07:41 AM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Donated. Will do so again after paycheck. Praying for you. Thank you!!
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Re: Kristen needs some help - GoFundMe
[Re: Paul Dobbins]
#7596528
06/02/22 08:00 AM
06/02/22 08:00 AM
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Joined: Dec 2006
Posts: 21,716 Sandhills Nebraska
Gary Benson
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Kristen, I am on Keppra. It's a miracle drug. I haven't had a seizure since I started it 4 years ago and haven't even had a head cold for several years. Or a hangover even.
Last edited by Gary Benson; 06/02/22 08:19 AM.
Life ain't supposed to be easy.
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Re: Kristen needs some help - GoFundMe
[Re: Paul Dobbins]
#7596545
06/02/22 08:15 AM
06/02/22 08:15 AM
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Joined: Feb 2014
Posts: 25,694 nm
adam m
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Re: Kristen needs some help - GoFundMe
[Re: Gary Benson]
#7596552
06/02/22 08:25 AM
06/02/22 08:25 AM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Kristen, I am on Keppra. It's a miracle drug. I haven't had a seizure since I started it 4 years ago and haven't even had a head cold for several years. Or a hangover even. I may ask to switch to this if Topamax doesn't work out. I'm glad it's working for you!
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Re: Kristen needs some help - GoFundMe
[Re: Paul Dobbins]
#7596557
06/02/22 08:34 AM
06/02/22 08:34 AM
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Joined: Jun 2010
Posts: 3,300 Ontario, Canada
slydogx
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Good luck Kristen and best wishes for a full recovery. Sending a small donation and some prayers up from Ontario.
Just happy to be here.
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Re: Kristen needs some help - GoFundMe
[Re: slydogx]
#7596680
06/02/22 01:01 PM
06/02/22 01:01 PM
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Joined: Sep 2009
Posts: 1,790 OH
Kristen🦊
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Good luck Kristen and best wishes for a full recovery. Sending a small donation and some prayers up from Ontario. thank you so much!!!
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