Thanks again everyone. We got to see him in recovery last night. He was barely waking up and still ver loopy after a 13 hour procedure. They got most of it but had to send out a sample to pathology to get an exact determination about it. There are different types of chordomas. They did have a spinal fluid leak so he had it patched with some fat from his thigh and has a drain running down his back to a bag. The tumor was removed through his nose. The surgeons sounded pretty tired but seem to indicate that all had gone well.

Many thanks to all who sent their prayers and good wishes! You’re all family and my son was pleased to hear that so many of you had chimed in. Scariest thing he’s ever had to confront so far in his life.

Sounds like pretty good results then. Now just got to pray that the pathology results come back good. Sorry your son is having to go through all this.

x2

Best of luck to your son. Hes awake after brain surgery thats a big deal. Hes gonna be ok. I had a few pieces removed myself.

That sounds encouraging Peeler ! We have another TMAN member who had that same type of procedure. He is fine today.

When his dad found out the doc had used tissue from his thigh to plug the hole..............his dad said......."I always knew he was a fat head ! "

Hoping all goes well from here on.

It will be a long haul peeler, Good thing he has Great parents.

Prayers continue here.




Charlie

I am relieved the procedure went as planned. Been watching this thread. The rest should go well too.

thank you for the update. I have been watching for it. sounds like great news so far.

Prayers from WV.

Stay strong!

GOD is good!!!

continue prayers,

Prayers are continuing

Thanks for the up date...one day at a time

I know someone who had a similar surgery. In two months he was normal. That was almost 20 years ago. Surgery was in Norfolk Va.

Continued prayers Peeler.

WS

Any up dates ??

Thanks for the update and glad to hear things are sounding positive.

Yotetrapper reminded me I haven’t kept up in my kids progress:


So, he had a setback, the patch to fix a spinal fluid leak failed. A new lumbar drain had to be installed and new surgery to install another patch. This one was included a thin layer of muscle tissue from his thigh.
Still no word from pathology on exactly the nature of the tumor.

He’s been hospitalized for 12 days so far. I’m up here day and night right now as was my ex all of last week.
He is doing much better now and later today they will clamp the drain and see if the patch holds. If it does he may be able to come home as early as tomorrow.

Poor kid has been through a lot. The install of the new lumbar drain was excruciatingly painful.

Our prayers are with you all Carl.

Keep an eye on the color of the drained fluid contained within the JP collection vessel. It will give you an indication of the healing/bonding process within the area of the implant. They typically won't discharge him until the JP fluid is mostly pale yellow.