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Ocular Aura without migraines #8258700
11/10/24 01:40 PM
11/10/24 01:40 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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Joined: Oct 2011
western pa
Anyone else suffer from these? I get auras a couple times a week but i dont get the migraines that used to follow them. Now I just feel kinda crappy all day long. I try to explain them to people that have never had one that it is like looking through half a kaleidoscope.



Re: Ocular Aura without migraines [Re: goldnut] #8258703
11/10/24 01:43 PM
11/10/24 01:43 PM
Joined: Jan 2023
Pennsylvania
elsmasho82 Offline
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Pennsylvania
Not without migraines! I first had that in high school and I lost all my peripheral vision and my tongue and fingers went numb. Terrible! Maybe you should have an MRI

Re: Ocular Aura without migraines [Re: elsmasho82] #8258709
11/10/24 01:53 PM
11/10/24 01:53 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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western pa
Originally Posted by elsmasho82
Not without migraines! I first had that in high school and I lost all my peripheral vision and my tongue and fingers went numb. Terrible! Maybe you should have an MRI

Thanks Ashley, Ive had a few and Im on medication. (Depakote) Sure doesnt seem to be helping lately



Re: Ocular Aura without migraines [Re: goldnut] #8258715
11/10/24 02:03 PM
11/10/24 02:03 PM
Joined: Mar 2007
McGrath, AK
W
white17 Offline

"General (Mr.Sunshine) Washington"
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"General (Mr.Sunshine) Washington"
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Joined: Mar 2007
McGrath, AK
Originally Posted by goldnut
Anyone else suffer from these? I get auras a couple times a week but i dont get the migraines that used to follow them. Now I just feel kinda crappy all day long. I try to explain them to people that have never had one that it is like looking through half a kaleidoscope.



Yes but not that often. Usually I need to close my eyes in a dark room for about ten minutes and it goes away.


I have a sneaking suspicion that it may be triggered by the refresh rate on my computer monitor. That is when it USUALLY happens.....but not always


Mean As Nails
Re: Ocular Aura without migraines [Re: goldnut] #8258721
11/10/24 02:09 PM
11/10/24 02:09 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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Joined: Oct 2011
western pa
White, I have woke up in the middle of the night and have had one. I hope that isnt my trigger! LOL



Re: Ocular Aura without migraines [Re: goldnut] #8258728
11/10/24 02:24 PM
11/10/24 02:24 PM
Joined: Mar 2007
McGrath, AK
W
white17 Offline

"General (Mr.Sunshine) Washington"
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"General (Mr.Sunshine) Washington"
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Joined: Mar 2007
McGrath, AK
LOL For sure !! I don't recall that ever happening.

How's your BP ?


Mean As Nails
Re: Ocular Aura without migraines [Re: goldnut] #8258733
11/10/24 02:31 PM
11/10/24 02:31 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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western pa
It is a bit high today. That is the the only other medication that Im on.



Re: Ocular Aura without migraines [Re: goldnut] #8258735
11/10/24 02:38 PM
11/10/24 02:38 PM
Joined: Mar 2007
McGrath, AK
W
white17 Offline

"General (Mr.Sunshine) Washington"
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Joined: Mar 2007
McGrath, AK
I suspect there is a relationship between the two. No idea if it is "cause" or just correlation.

Have you checked to see if that med has a side effect that might be related ?

What drug is it ?


Mean As Nails
Re: Ocular Aura without migraines [Re: goldnut] #8258736
11/10/24 02:38 PM
11/10/24 02:38 PM
Joined: Mar 2020
W NY
Turtledale Offline
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Joined: Mar 2020
W NY
Yes I get them occasionally. 3 or 4 times a year. Never had headaches associated with them. They usually last anywhere from a few hours to 2 days. Then it goes away as fast as it comes on. I've also woke up with the condition. Can't figure out what triggers it. Have never seeked medical advice over it. Have had this happen most of my life.


NYSTA, NTA, FTA, life member Erie county trappers assn.,life member Catt.county trappers
Re: Ocular Aura without migraines [Re: white17] #8258740
11/10/24 02:46 PM
11/10/24 02:46 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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Joined: Oct 2011
western pa
Originally Posted by white17
I suspect there is a relationship between the two. No idea if it is "cause" or just correlation.

Have you checked to see if that med has a side effect that might be related ?

What drug is it ?

Im on Depakote for the migraines and Benazepril for the BP. My neurologist is aware of the Benazepril. He did want to up the dose a bit but I said I didnt want to go that route since it makes me tired as it is. We may have to explore other options.



Re: Ocular Aura without migraines [Re: Turtledale] #8258742
11/10/24 02:47 PM
11/10/24 02:47 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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western pa
Originally Posted by Turtledale
Yes I get them occasionally. 3 or 4 times a year. Never had headaches associated with them. They usually last anywhere from a few hours to 2 days. Then it goes away as fast as it comes on. I've also woke up with the condition. Can't figure out what triggers it. Have never seeked medical advice over it. Have had this happen most of my life.

Wow Im glad mine done last for days! Glad you only get a few a year.



Re: Ocular Aura without migraines [Re: goldnut] #8258746
11/10/24 02:52 PM
11/10/24 02:52 PM
Joined: Mar 2007
McGrath, AK
W
white17 Offline

"General (Mr.Sunshine) Washington"
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Joined: Mar 2007
McGrath, AK
Familiar with Benazepril a little bit. Caused headaches for me so I got it changed. No experience with Depakote.

I used to get the migraine after the aura but once I got my BP under control the actual headache didn't materialize again


Mean As Nails
Re: Ocular Aura without migraines [Re: goldnut] #8258750
11/10/24 03:01 PM
11/10/24 03:01 PM
Joined: Jul 2022
Va
S
Spike369 Offline
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S

Joined: Jul 2022
Va
I get them a couple times a week. I take 2 advil and 20 minutes later they are gone. Never got them until I reached 60. Seems like everything goes at 60.

Last edited by Spike369; 11/10/24 03:02 PM. Reason: Spelling.
Re: Ocular Aura without migraines [Re: goldnut] #8258752
11/10/24 03:10 PM
11/10/24 03:10 PM
Joined: May 2009
Champaign County, Ohio.
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KeithC Offline
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Champaign County, Ohio.
I get migraines with auras and tunnel vision. My pupils become tiny when I get them.

I got my first migraine when I was 10 years old in the chapel in a monastery in California, after eating most of a huge honey dew. I didn't eat honey dew or cantaloupe again until a few years ago, close to 40 years. My second migraine happened in our parish church. I thought I was going blind when I had my first migraines.

They were frequent from 10 through my teens. As I've aged, they have become less frequent and of short duration. I usually don't get a headache. The big problem is I can barely see during one.

Keith

Re: Ocular Aura without migraines [Re: KeithC] #8258762
11/10/24 03:28 PM
11/10/24 03:28 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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western pa
Originally Posted by KeithC
I get migraines with auras and tunnel vision. My pupils become tiny when I get them.

I got my first migraine when I was 10 years old in the chapel in a monastery in California, after eating most of a huge honey dew. I didn't eat honey dew or cantaloupe again until a few years ago, close to 40 years. My second migraine happened in our parish church. I thought I was going blind when I had my first migraines.

They were frequent from 10 through my teens. As I've aged, they have become less frequent and of short duration. I usually don't get a headache. The big problem is I can barely see during one.

Keith

Keith, this is what I go through. Usually no headaches but vision problems. In the past I would get an aura and head home from where ever I was since I knew the migraine was coming in about 30 minutes. Glad those days are gone.



Re: Ocular Aura without migraines [Re: KeithC] #8258764
11/10/24 03:34 PM
11/10/24 03:34 PM
Joined: Mar 2007
McGrath, AK
W
white17 Offline

"General (Mr.Sunshine) Washington"
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Joined: Mar 2007
McGrath, AK
Originally Posted by KeithC
I get migraines with auras and tunnel vision. My pupils become tiny when I get them.

I got my first migraine when I was 10 years old in the chapel in a monastery in California, after eating most of a huge honey dew. I didn't eat honey dew or cantaloupe again until a few years ago, close to 40 years. My second migraine happened in our parish church. I thought I was going blind when I had my first migraines.

They were frequent from 10 through my teens. As I've aged, they have become less frequent and of short duration. I usually don't get a headache. The big problem is I can barely see during one.

Keith



Here again I suspect it could be an odd light frequency as the trigger.........like me with the computer monitor. One usually imagines different lighting or lack of it in church type settings. Just spitballing


Mean As Nails
Re: Ocular Aura without migraines [Re: white17] #8258775
11/10/24 03:48 PM
11/10/24 03:48 PM
Joined: May 2009
Champaign County, Ohio.
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KeithC Offline
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Joined: May 2009
Champaign County, Ohio.
Originally Posted by white17
Originally Posted by KeithC
I get migraines with auras and tunnel vision. My pupils become tiny when I get them.

I got my first migraine when I was 10 years old in the chapel in a monastery in California, after eating most of a huge honey dew. I didn't eat honey dew or cantaloupe again until a few years ago, close to 40 years. My second migraine happened in our parish church. I thought I was going blind when I had my first migraines.

They were frequent from 10 through my teens. As I've aged, they have become less frequent and of short duration. I usually don't get a headache. The big problem is I can barely see during one.

Keith



Here again I suspect it could be an odd light frequency as the trigger.........like me with the computer monitor. One usually imagines different lighting or lack of it in church type settings. Just spitballing


Some light frequencies definitely make having a migraine more likely for me. Bright morning sunshine, through a car window, can cause a migraine.

Keith

Re: Ocular Aura without migraines [Re: goldnut] #8258788
11/10/24 04:05 PM
11/10/24 04:05 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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Joined: Oct 2011
western pa
There are many migraine triggers but the most common ones are sugar and flour when turned into wedding cake,



Re: Ocular Aura without migraines [Re: goldnut] #8258795
11/10/24 04:18 PM
11/10/24 04:18 PM
Joined: Mar 2007
McGrath, AK
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white17 Offline

"General (Mr.Sunshine) Washington"
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Joined: Mar 2007
McGrath, AK
I knew a gal years ago who was so susceptible to migraines that we could not use that word around her


Mean As Nails
Re: Ocular Aura without migraines [Re: white17] #8258804
11/10/24 04:25 PM
11/10/24 04:25 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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western pa
Originally Posted by white17
I knew a gal years ago who was so susceptible to migraines that we could not use that word around her

laugh



Re: Ocular Aura without migraines [Re: goldnut] #8258877
11/10/24 05:56 PM
11/10/24 05:56 PM
Joined: Dec 2015
se South Dakota
NonPCfed Offline
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Joined: Dec 2015
se South Dakota
I get the ocular migraines as you describe with no pain but with little to no lingering aspects. My mother used to get something like them and my brother (a physician) gets them. Started off a couple times a year when I was an young adult, much more frequent now, a couple times of week. This year, I started to track when I got them and it was about a 50-50 split between am and pm,just had one about an hour ago. Mine are very predictable and last about 20 minutes. First its a hole in the vision, then the aura, and finally the "kaleidoscope" -- which I wish I could record the "imagery", it might be interesting to watch. No real lingering effects, although sometimes I feel "flashbulbed" for a while.

Driving is a bit interesting when they are happening and reading things, either on paper or on a screen, is a pain, but really not much of a hassle compared to lots of other things. A recent doctor's visit, they suggested an old blood pressure med but it sounds like its various potential side effects are worse than the actual event. I filled the script but I thinking it will be a $3 out of pocket donation to the pharmacy.


"And God said, Let us make man in our image �and let them have dominion �and all the creatures that move along the ground".
Genesis 1:26
Re: Ocular Aura without migraines [Re: NonPCfed] #8258900
11/10/24 06:28 PM
11/10/24 06:28 PM
Joined: Oct 2011
western pa
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goldnut Offline OP
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western pa
Originally Posted by NonPCfed
I get the ocular migraines as you describe with no pain but with little to no lingering aspects. My mother used to get something like them and my brother (a physician) gets them. Started off a couple times a year when I was an young adult, much more frequent now, a couple times of week. This year, I started to track when I got them and it was about a 50-50 split between am and pm,just had one about an hour ago. Mine are very predictable and last about 20 minutes. First its a hole in the vision, then the aura, and finally the "kaleidoscope" -- which I wish I could record the "imagery", it might be interesting to watch. No real lingering effects, although sometimes I feel "flashbulbed" for a while.

Driving is a bit interesting when they are happening and reading things, either on paper or on a screen, is a pain, but really not much of a hassle compared to lots of other things. A recent doctor's visit, they suggested an old blood pressure med but it sounds like its various potential side effects are worse than the actual event. I filled the script but I thinking it will be a $3 out of pocket donation to the pharmacy.

Your description fits mine about the same. When im reading I see that hole appear and know whats coming.



Re: Ocular Aura without migraines [Re: goldnut] #8258901
11/10/24 06:28 PM
11/10/24 06:28 PM
Joined: Dec 2008
Eastern Shore of Maryland
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Eastern Shore of Maryland
Originally Posted by goldnut
Anyone else suffer from these? I get auras a couple times a week but i dont get the migraines that used to follow them. Now I just feel kinda crappy all day long. I try to explain them to people that have never had one that it is like looking through half a kaleidoscope.


Wife suffers this, explained it just as you did. Problem is, it’s her good eye. frown


-Goofy
Re: Ocular Aura without migraines [Re: goldnut] #8258929
11/10/24 07:11 PM
11/10/24 07:11 PM
Joined: Oct 2023
Ohio
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bleeohio Offline
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Ohio
I had one today. I get them often. It always starts with a small pattern, usually more in one eye than the other. I call it glitter eye. It works it's way out in the shape of a c and goes away and then the low grade headache starts in the neck area. Some are worse than others and will knock me down for a day, some don't do much at all. Todays wasn't to bad. It does run in my family as my mom has had them her whole life and she's still going strong at 85. She can outrun me. I usually don't take anything for it but if i keep on the magnesium, it doesn't happen as often. I feel for ya as it can make you miserable.

Re: Ocular Aura without migraines [Re: goldnut] #8258948
11/10/24 07:45 PM
11/10/24 07:45 PM
Joined: Dec 2015
se South Dakota
NonPCfed Offline
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Quote
I usually don't take anything for it but if i keep on the magnesium, it doesn't happen as often.


Good to know. I'll try to increase that element in my diet.

The recent doc recommended Propranolol (trade name, I think) which is a beta blocker BP med. My brother (a physician) tried that for his ocular events and had numerous side effects, including, as he described it, "Mr. Happy" not working. I think I'll pass...


"And God said, Let us make man in our image �and let them have dominion �and all the creatures that move along the ground".
Genesis 1:26
Re: Ocular Aura without migraines [Re: goldnut] #8258975
11/10/24 08:04 PM
11/10/24 08:04 PM
Joined: Oct 2023
Ohio
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Ohio
I hear that NonPc. I've been mri'd , catscanned poked and prodded to hades and back and they can't find anything but want me to start taking all this medication. I just tell them straight up, i'm not gonna take it, i think they hate me.

Re: Ocular Aura without migraines [Re: goldnut] #8258979
11/10/24 08:10 PM
11/10/24 08:10 PM
Joined: Aug 2010
Asheville, NC
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Wife had them in her 20's - 40's. Since minapause (sp), hardly anymore. I remember she was super sensitive to smells.

Re: Ocular Aura without migraines [Re: goldnut] #8259008
11/10/24 08:32 PM
11/10/24 08:32 PM
Joined: Apr 2011
Covington, VA
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Dewey S Offline
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Covington, VA
I get one about every 6 months or so. They usually start in the mornings. They last for 30 minutes. You could just about set a timer. Got my first one when I was around 21 years old. Thought I had brain cancer and was dying.

Re: Ocular Aura without migraines [Re: bleeohio] #8259051
11/10/24 09:06 PM
11/10/24 09:06 PM
Joined: Jan 2014
Virginia
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Originally Posted by bleeohio
I had one today. I get them often. It always starts with a small pattern, usually more in one eye than the other. I call it glitter eye. It works it's way out in the shape of a c and goes away and then the low grade headache starts in the neck area. Some are worse than others and will knock me down for a day, some don't do much at all. Todays wasn't to bad. It does run in my family as my mom has had them her whole life and she's still going strong at 85. She can outrun me. I usually don't take anything for it but if i keep on the magnesium, it doesn't happen as often. I feel for ya as it can make you miserable.

I had that glitter eye in my left eye one time the shape of a c. It lasted for 2-3 minutes and went away. No headache occurred afterwards. I don't get headaches ever. Blessed I guess.
One time I was watching TV and I couldn't see faces. They were blurry. I could see everything else but not faces. I was kind of sleepy at the time. At this point, I hope that it was just a halfway waking dream. Kind of scary at the time.

Re: Ocular Aura without migraines [Re: goldnut] #8259078
11/10/24 09:31 PM
11/10/24 09:31 PM
Joined: Dec 2015
AZ
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AZ
I experienced something similar. It was the first symptom of what turned out to be brain cancer. It started with trouble focusing while reading and then moved into auras and then migraines like headaches. if your symptoms progress it is something that you should have checked out. An optometrist and doctor both thought it was migraines and treated for that, which had no effect. Hope that is is not the case here but if it progresses you want to have it checked out.

Re: Ocular Aura without migraines [Re: goldnut] #8259100
11/10/24 09:50 PM
11/10/24 09:50 PM
Joined: Dec 2006
Pa
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Pa
I've spent a lot to learn that eye docs know things others do not.
Young ones have the modern sheepskin.
Optometrist in Sarver Pa that studied in Pittsburgh.
And Retinal gist (spelling) in Cranberry/Pittsburgh that studied in Germany.

Ask a young eye doctor.





Re: Ocular Aura without migraines [Re: goldnut] #8259106
11/10/24 09:55 PM
11/10/24 09:55 PM
Joined: Oct 2011
western pa
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I thought auras happened to just a few people. Seems like a lot of you suffer from the same. I feel for every one of you.



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