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Going to be a looooong weekend #8479966
Yesterday at 10:54 PM
Yesterday at 10:54 PM
Joined: Feb 2020
Indiana
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Providence Farm Offline OP
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Providence Farm  Offline OP
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Joined: Feb 2020
Indiana
I went to my new neurologist today at 1. Finally a really good one it seems. He ran me through every showed my old scans and explained them. If only I would have had this guy 5 years ago I would have taken this seriously sooner and likely have less damage.

He suggested I go downstairs to the ER and I would get admitted and I would get new scans done faster and with those scans he would confirm his diagnosis. Once confirmed they can start IV steroids for treatment that will work faster and better to get hopefully get rid of this relapse. BUT its 3 days of treatment.

So hear i sit in my room admitted still waiting on scans to be done With what looks like the next 3 days wasting time sitting in thei hospital room. Im going to go nuts and is not been but 10 hours so far.

Edit. But the alternative of wasting time and having more damage occur is worth it. This MS stuff is nothing g to mess around with apparently. And I have been screwing around for the last 5 years.




Last edited by Providence Farm; Yesterday at 11:11 PM.
Re: Going to be a looooong weekend [Re: Providence Farm] #8479967
Yesterday at 10:58 PM
Yesterday at 10:58 PM
Joined: Jan 2007
Wisconsin
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Moosetrot Offline
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Moosetrot  Offline
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Joined: Jan 2007
Wisconsin
I wish you my best Providence!

Moosetrot

Re: Going to be a looooong weekend [Re: Providence Farm] #8479969
Yesterday at 11:21 PM
Yesterday at 11:21 PM
Joined: Oct 2024
Kansas
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someGuyInKansas Offline
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Joined: Oct 2024
Kansas
I'm sorry to hear that. MS is serious. As I recall, there are some new medications for MS that work much better treating it. So you're better off than those diagnosed a couple decades ago.

My wife has several autoimmune things going and has been tested for MS several times. Thankfully MS tests has always come back negative.

Re: Going to be a looooong weekend [Re: Providence Farm] #8479974
Yesterday at 11:27 PM
Yesterday at 11:27 PM
Joined: May 2009
Champaign County, Ohio.
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KeithC Offline
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KeithC  Offline
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Joined: May 2009
Champaign County, Ohio.
Matt, I hope they can stop the MS from progressing and that you start feeling better.

Keith

Re: Going to be a looooong weekend [Re: someGuyInKansas] #8479975
Yesterday at 11:27 PM
Yesterday at 11:27 PM
Joined: Feb 2020
Indiana
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Providence Farm Offline OP
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Providence Farm  Offline OP
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Joined: Feb 2020
Indiana
Originally Posted by someGuyInKansas
I'm sorry to hear that. MS is serious. As I recall, there are some new medications for MS that work much better treating it. So you're better off than those diagnosed a couple decades ago.

My wife has several autoimmune things going and has been tested for MS several times. Thankfully MS tests has always come back negative.


Yes, the doc said the new stuff has some options. Every 6 month you get an can get an IV infusion, or another one you give yourself s shot in the leg once a month, or daily pills. He said its a big improvement over times passed.

But it will weaken my immune system and could increase cancer risk( he down played that but i have a lot of cancer in my family so i caught it) . He said it takes a few weeks to get insurance approval and thought the shot in the leg would fit my life style best.

Re: Going to be a looooong weekend [Re: KeithC] #8479979
Yesterday at 11:34 PM
Yesterday at 11:34 PM
Joined: Feb 2020
Indiana
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Providence Farm Offline OP
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Providence Farm  Offline OP
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Joined: Feb 2020
Indiana
Originally Posted by KeithC
Matt, I hope they can stop the MS from progressing and that you start feeling better.

Keith



Thanks my fingers are crossed. Sure is hard to sit around in this hospital. Im missing work and family is at home. When I'm not at work my place is at home with the family not in a dang hospital room. On top of that I have deer to get packed and in the freezer so i can get thw coolers empty and butcher the last batch of chicken for the year.

If they would tell me what time things would get done I would keep the door shut head home and be back to get the test an meds. They already told me about all the places to walk around this hospital they won't miss me several hours.

Think I will see if there is any low carb in the cafeteria now infact

Re: Going to be a looooong weekend [Re: Providence Farm] #8480252
4 hours ago
4 hours ago
Joined: Feb 2020
Indiana
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Providence Farm Offline OP
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Providence Farm  Offline OP
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Joined: Feb 2020
Indiana
Good news is I'm was able to talke to the neurologist on call and a guy from the hospital came in and over heard me saying I would prefer to not have to stay 3 days starting today while she was giving me the oral option. He thout the amout was hig enough it would cause my stomach problems but brought up he may be able to get me set up at an off sight place that will be a walk in and out done in 40 min instead.

I said sounds great just make sure my insurance covers it. It will and they could get me secdualed so I was released after my first infusion.


The bad news is yes my existing damage had enlarged and I have more damage some larger spots.than the old enlarged spots. So a 100% confirmation of Ms. The meds will suppres my immune system, have an increased risk of cancer, and incfeas the likelihood of geting shingles, an irritation if on the body trunk but bad news if in you eyes or head. So time to weigh the pros.and cons but really is not much choice bu to let my body destroy my brain and get worse or try to slow it down.


At least I feel more justified now in working all the hours I have in the last 3 years working on getting my finances in a beter spot if I do end up not able to continue to work in the future. Hopefully that won't happen but is a big load off knowing its a possibility with MS. Turns the Questining did/am I doing the right thing being away so much working all those 80 - 100 hr weeks to Yes I did it and it It may be tight but my family will be ok if that happens and the planning and sacrifices did waht I hoped to accomplish.

Hopefully these steroid infusions get me back to feeling more normal and the meds hold relapse at bay.






Last edited by Providence Farm; 4 hours ago.
Re: Going to be a looooong weekend [Re: Providence Farm] #8480254
4 hours ago
4 hours ago
Joined: Dec 2006
Missouri
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mississippiposse Offline
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Joined: Dec 2006
Missouri
Good luck

Re: Going to be a looooong weekend [Re: mississippiposse] #8480316
2 hours ago
2 hours ago
Joined: Jun 2012
KY.usa
rex123 Offline
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rex123  Offline
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Joined: Jun 2012
KY.usa
God be with you take care of yourself.

Re: Going to be a looooong weekend [Re: Providence Farm] #8480320
1 hour ago
1 hour ago
Joined: Sep 2013
Green County Wisconsin
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GREENCOUNTYPETE Offline
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GREENCOUNTYPETE  Offline
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Joined: Sep 2013
Green County Wisconsin
have your crew stop by the library and get a bunch of DVDs and watch movies , that was what we did last time it was 4 days in the hospital

best to get the care now rather than get put off weeks waiting on appointments.

hang in there


America only has one issue, we have a Responsibility crisis and everything else stems from it.
Re: Going to be a looooong weekend [Re: Providence Farm] #8480322
1 hour ago
1 hour ago
Joined: Sep 2024
Nevada
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Foundryman Offline
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Nevada
Praying


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